Funds raised through Rusfond's readers
On the 27th week of pregnancy the doctors have told me that my son has a congenital development defect of the genitourinary system. After birth, it was discovered that Misha had enlarged ureters and as a result, the urine stagnates, and leaves the body at a slow rate. Consequently, bacterial flora grows and multiplies. This leads to the inflammation of the kidneys. Then another serious problem was discovered – the posterior urethral valve. Doctors explained that the abnormal folds of the mucous membrane in the urethra block the normal expulsion of urine.
In the first week after his birth, my son had surgery at the Federal Almazov North-West Medical Research Centre (St Petersburg), where Misha’s ureters where extracted from his kidneys and placed on his back (stoma). Few more operations followed but Misha’s condition worsened, plus it was discovered that he has a vesicoureteric reflux (VUR), where the urine flows back into the kidneys. As a result, the right kidney stopped working altogether and was removed.
At present, Misha often suffers from the inflammation of the bladder and the single kidney. He can’t control his urination and I change his diaper every two hours. The doctors warned us that because of the endless infections, the second kidney may also stop working; in that case a transplant will be required. Doctors are not offering any treatment, only medical observation. We were advised to reach out to the London-based paediatric urological surgeon Professor Imran Mushtaq at the Portland Hospital. Having looked at Misha’s medical documents, he thinks that he will be able to help. A reconstruction of the bladder is required, which will make the genitourinary system work practically in a same way as in a healthy person. The constant illnesses will stop and Misha will be able to stop wearing diapers and will be able to go to school. At the moment we can’t even dream of this. However, the medical bill from the London hospital is completely out of our reach. Please help us! Alesya Kosenkova, Pskov region.
Paediatric urological surgeon at the Portland Hospital, Professor Imran Mushtaq (London): “In order to restore the function of the bladder and to join it to the left kidney, Misha requires surgery. This will protect the kidney from infection, will allow to avoid transplantation and the boy will be able to control urination. Presently, the urine drips out of the stoma into the diaper and onto the clothing. This operation will change Misha’s life and he will be just like all of the healthy children”.