My daughter has a rare genetic disease which causes the formation of numerous benign tumours. This condition was discovered when Landish was six years old, when her vision became impaired, when she started to have severe headaches and when faint spots appeared on her skin. The doctors removed the tumour from the brain straight away and the illness didn’t bother Landish for three years. We were hoping that things would stay that way. However, the tumours have appeared once again. This time, not only in the brain but also in the eye, on the liver and on the kidneys. Once again, the tumour was removed from Landish’s brain, however, only partly, due to the risk of causing any damage the brain. The growth of the tumour can be suppressed by taking a costly medication, which the Russian government does not provide. We contacted Rusfond and you have helped us to purchase this medication. Despite the fact that my daughter’s wellbeing has improved, the tumours continue to grow. They need to be removed; however, the doctors in Russia are refusing to do so. We have already found a clinic in England that is prepared to carry out the treatment. Please help us to pay for the treatment, as we cannot afford to do so ourselves.
Rashida Ibragimova, Tatarstan.
Christian Aquilina, Paediatric Neurosurgeon of the Great Ormond Street Hospital (London): «Based on the documents provided, we have come to the conclusion that a surgical treatment is indeed possible. However, prior to this, we will carry out a full medical examination of the patient, hold consultations with various specialists, and then, based on the results of the examination, we will perform the surgery to remove the tumours».
Landish Ibragimova came back home
Examination which has been done in Great Ormond St hospitalshow that there is no surgical intervention indicated. The required amount of money has been raised thanks to Rusfond (Rusfond.ru). She has been recommended to continue drag therapy only.
Landish's parents grateful for the help.