Dear Friends, 

Welcome to Rusfond UK, a registered charity in England and Wales (No. 1151840).

We incorporated in January 2013 and our primary objective is to help seriously ill children from Russia access life-saving medical care in the UK - children whom the Russian healthcare system is incapable of supporting and who do not have the means to pay for necessary medical treatment.

The treatment of rare, life-threatening diseases is very expensive due to their infrequent occurrence (1 case per 10, 000 people in Russia and not more than 5 per 10, 000 people in the European Union).  The supply of medicines and technologies to treat these diseases is limited and costly.

In 2012, the Russian Government officially recognised and adopted the term 'rare' diseases for the first time and has started providing funds for the treatment of 24 'rare' diseases.  The problem is that there are over 5, 000 known rare diseases worldwide and the current state provisions are insufficient.  Specialist doctors often have the technologies that could save patients - the main challenge is paying for the medical treatment.

The Russian Aid Foundation (Rusfond), established in Moscow by the Kommersant newspaper in 1996, refers children to Rusfond UK for medical treatment here.  Rusfond is a leading children's charity in Russia (it raised over $28 million in 2012); it publishes the accounts of desperate parents, and encourages readers to donate money so that sick children can receive medical care.  The appeals for help that Rusfond brings to light are also re-published in print and electronic mass media in dozens of Russian regions as well as abroad, including the UK.  Televised accounts and requests for assistance on Russian television led to several Russians in the UK making donations - and that is how Rusfond UK came into existence.

 

Here you can read letters from people who have nowhere else to turn.  We offer you their stories not to make you shed a tear, but to motivate you to help those who need your support.  We hope that with your assistance Rusfond UK will be able to make a change for the better.  While it is not true that kindness will save the world - saving the world is not the province of us mere mortals - an act of kindness can save a life.